Pediatric MDS: What Parents Need to Know
Dr. Hanna discusses MDS and its prevalence in children. He covers symptoms associated and the possible treatment options for children (Recorded on Sept. 5, 2017).
Dr. Hanna discusses MDS and its prevalence in children. He covers symptoms associated and the possible treatment options for children (Recorded on Sept. 5, 2017).
Dr. Gail Roboz and Dr. Rami Komrokji discuss advances in MDS research reported at two major 2017 hematology/oncology conferences (Recorded on August 29, 2017).
Dr. Jaroslaw Maciejewski briefly discusses the diagnosis and treatment of PNH and MDS and their relationship (Recorded on August 24, 2017).
Dr. Michael Keng discusses the latest research behind current non transplant treatment and clinical trials that are active for MDS (Recorded on August 17, 2017).
Dr. Araten will discuss the importance of flow cytometry in relation to the diagnosis of PNH and aplastic anemia (Recorded on July 24, 2017).
Dr. Friedman explains the impact of a bone marrow failure disease diagnosis and the effect that treatment can have on pregnancy (Recorded on July 12, 2017).
Dr. Patel explain the basics of diagnostic genetic testing and the significance in bone marrow failure diseases (Recorded on June 29, 2017).
Dr. Kogan explains the growing field of complementary and integrative medicine (CIM) approaches most relevant to bone marrow failure patients (Recorded on June 22, 2017).
Pierse Byrnes discusses short and long term effects of PNH and how you can manage your symptoms (Recorded on June 14, 2017).
Katie Schoeppner will explain the role of a caregiver before, during, and after transplant (Recorded on June 7, 2017).
Dr. Lewis discusses what's on the horizon for PNH non-transplant treatments including active clinical trials in PNH (Recorded on May 23, 2017).
Lisa Rivera discusses the short and long term effects of MDS and how to manage symptoms for better quality of life (Recorded on May 18, 2017).
Dr. Nakano briefly discusses the causes, diagnosis and treatment of aplastic anemia and its prevalence in pediatric patients (Recorded on May 11, 2017).
Christina Ferrero discusses family planning and preserving fertility when considering a bone marrow transplant (Recorded on May 3, 2017).
Dr. List discusses inflammation in relation to MDS and new targeted therapies for the MDS clone (Recorded on April 17, 2017).
Dr. Smith explains haploidentical and cord blood transplant and what factors to consider as you talk with your doctor (Recorded on April 13, 2017).
Rachel Tannis, a nurse from Mount Sinai discusses short and long term effects of aplastic anemia and tips for better quality of life (Recorded on April 11, 2017).
Registered dietitian, Emily Biever, discusses how proper nutrition is important for overall health and keeping a strong immune system (Recorded on March 30, 2017).
Dr. Parker uses real life case studies to understand PNH, possible causes and symptoms you might experience (Recorded on March 23, 2017).
Dr. Shimamura uses a number of case studies to help you understand aplastic anemia and its treatment (Recorded on March 2, 2017).
Dr. Fazal explains MDS, discuss possible causes and define symptoms you might experience (Recorded on February 28, 2017).
Elvia Anderson habla sobre como usted puede navegar el seguro medico en los Estados Unidos (Recorded on February 23, 2017).
Dr. Winkler and Dr. Abdel-Wahab discuss most relevant research reported over the past year on the treatment of aplastic anemia and PNH. (Recorded on February 15, 2017)
Amy DeZern and Hetty Carraway discuss most relevant research to patients reported from ASH 2016 on the biology and treatment on MDS (Recorded on February 7, 2017)
Dr. Araten discusses what's new in aplastic anemia and PNH research in 2016 and explains the future of emerging therapies in 2017 (Recorded on December 15, 2016).
Dr. Park discusses what is on the horizon in MDS research for 2017. Dr. Park also talks about cytogenetics and epigenetics in relation to MDS (Recorded on Nov. 15, 2016).
Aimee Anderson discusses managing caregiver stress and offers practical advice and tips for caregiver wellness (Recorded on November 10, 2016).
Dr. Claudio Anasetti presents at our 2016 conference in West Palm Beach, FL on Bone Marrow Transplant (Recorded on November 5, 2016).
Dr. Danielle Townsley presents at our 2016 conference in West Palm Beach, FL on Advances in Aplastic Anemia Treatment (Recorded on November 5, 2016)
Dr. Danielle Townsley presents at our 2016 conference in West Palm Beach, FL on current treatments for Aplastic Anemia (Recorded on November 5, 2016).
Leslie Pettiford discusses fatigue in relation to bone marrow failure diseases such as aplastic anemia, MDS and PNH (Recorded on Oct. 31, 2016).
Dr. Maciejewski (Cleveland Clinic) discusses the diagnosis process of pure red cell aplasia (PRCA). He then explains symptoms and treatment options (October 3, 2016).
Dr. Rafael Bejar (University of California, San Diego) and Dr. Toyosi Odenike (University of Chicago) discuss the advances in MDS research. (September 28, 2016)
Dr. Charles Parker from the University of Utah presents on Advances in PNH Treatment: What’s on the Horizon (Recorded Sept. 17, 2016)
Dr. Charles Parker from the University of Utah presented on PNH: Current Thinking on the Disease, Diagnosis and Treatment (Recorded Sept. 17, 2016)
Dr. Rafael Bejar hablara sobre lo último en los estudios de los síndromes mielodisplásicos (SMD), el diagnostico, y el tratamiento. (Sept. 17, 2016)
Dr. Rafael Bejar de la Universidad de California en San Diego hablara sobre los avances en el tratamiento de los síndromes mielodisplásicos (SMD). (Sept 17, 2016)
Barbara Weinstein from the National Heart, Lung and Blood Institute (NIH) presents on what you need to know about clinical trials. (Recorded Sept. 17, 2016)
Dr. Griffiths discusses patient registries and their significance regarding rare diseases such as aplastic anemia, MDS, or PNH (Recorded on September 7, 2016).
Dr. Brooks discusses the importance of getting a second opinion and how it helps you become a more educated healthcare consumer (Recorded on August 30, 2016)
Dr. Dietz reviews the issues in pediatric bone marrow transplant (BMT) including HLA matching and protecting your child’s fertility (Recorded on August 16, 2016).
Dr. Araten discusses the role of the complement system and complement inhibitors in relation to PNH clone (Recorded on August 11, 2016).
Dr. Akhtari discusses the role of growth factors in patients with aplastic anemia, MDS, and PNH through real life case studies (Recorded on July 19, 2016).
Dr. Stratton uses case studies to help you understand how treatments for aplastic anemia, MDS and PNH can impact fertility (Recorded on July 12, 2016).
Dr. Pulsipher and Catherine MacLean provide both a physician and patient perspective of the transition from pediatric to adult care (Recorded on June 28, 2016)
Dr. Abdel-Wahab discusses secondary mutations and blood clotting (thrombosis) as they occur in cases of PNH (Recorded on June 21, 2016).
Dr. Navada helps you understand different subtypes of acquired aplastic anemia and how different subtypes influence treatment recommendations (Recorded on June 14, 2016).
Tammy De Gelder defines iron overload and explains the causes. She then helps you understand how common it is in MDS and how it is diagnosed. (Recorded on June 10, 2016)
Dr. Walker uses case studies to explain the risk factors, causes, and symptoms of developing secondary MDS (Recorded May 26, 2016).
Dr. Cutler, a transplant doctor and expert on GVHD discusses common side effects of transplant, with a special focus on GVHD. (Recorded May 18, 2016)
Dr. Saunthararajah discusses the main aplastic anemia treatment options, things that effect a treatment success and recent advancements. (Recorded May 12, 2016)
Dr. Scott discusses the causes and symptoms of hemolytic anemia, pancytopenia and thrombosis in PNH. (Recorded on May 10, 2016).
Barbara Rose from Hospice of Cincinnati presents on The Value of Sharing Wishes: Advance Care Planning & Decision Making. (Recorded April 30, 2016)
Dr. Hetty Carraway from the Cleveland Clinic presents on MDS: Current Thinking on the Disease, Treatment, and Diagnosis. (Recorded April 30, 2016)
Dr. Mikkael Sekeres from the Cleveland Clinic presents on Advances in MDS Treatment: What's on the Horizon. (Recorded April 30, 2016)
Dr. Babushok discusses the transfusion process and types, blood type compatibility, and issues critical for marrow failure diseases. (Recorded April 26, 2016)
Dr. Linda Burns discusses benefits and risks of BMT for marrow failure patients, providing tips for reducing short and long-term complications. (Recorded April 19, 2016)
Dr. Ruben Mesa explains MDS classification models and prognostic (IPSS) scoring systems that predict how an MDS case might progress. (Recorded on April 13, 2016)
Dr. Parker discusses the relationship between aplastic anemia and PNH and explains why the overlap between both diseases occurs. (Recorded April 7, 2016)
Dr. Smith discusses MDS, the causes, symptoms, and treatment options. Practical tips for taking charge of your care are also discussed. (Recorded on March 29, 2016).
Dr. Majhail explains transplant steps and factors used when deciding if transplant is right for you. (Recorded March 15, 2016)
Dr. DeZern discusses PNH, the causes, symptoms and treatment options. Practical tips for taking charge of your care are also discussed. (Recorded on March 22, 2016)
Dr. Bart Scott discusses aplastic anemia types, causes, symptoms and treatments. Practical tips for taking charge of your care are discussed. (Recorded March 8, 2016)
Dr. Sekeres and Dr. Steensma discuss MDS research reported over the past year that was presented at the ASH 2015 meeting in Orlando, FL. (Recorded on February 3, 2016)
Dr. Danielle Townsley and Dr. Jamile Shammo discuss new research findings from the ASH 2015 meeting in Orlando, FL (Recorded February 22, 2016).
Laura Better addresses managing the cost of your care by taking charge and becoming your own primary healthcare advocate. (Recorded Dec. 10, 2015).
Dr. Kasiani Myers discusses aplastic anemia, the treatments, and side effects, specifically for children and parents. (Recorded on November 16, 2015).
Dr. Rice discusses the advances in PNH treatment and what is on the horizon at our Tampa Conference (Recorded on Nov. 14 2015)
Dr. Michaelis discusses the current treatment strategies including drug therapy and specific treatment decisions. (Recorded on October 6, 2015)
Dr. Komrokji and Dr . Padron discuss the latest MDS research presented at the American Society of Clinical Oncology and the European Hematology Association. (Recorded...
Dr. Warlick discusses emerging diagnostic procedures and prognostic models that help determine the risk for progression from MDS to AML (Recorded on Sept. 29, 2015).
Dr. Navada discusses population data and the most current research and thinking on aplastic anemia, MDS and PNH. (Recorded on September 25, 2015)
Dr. Shyamala Navada reviews lab results and explains what all the numbers mean. Includes info on genetic tests to aid in diagnosis. (Recorded July 13, 2015)
Dr. Antin discusses treatment options and the benefits and risks of bone marrow transplants and immunosupressive therapies. (Recorded on April 13, 2015)
Dr. Leich discusses transfusion dependence, iron overload (IOL), and possible treatment options for MDS patients. (Recorded on March 25, 2015)
Dr. Araten answers questions that were submitted about PNH. (Recorded on December 18, 2014)
Dr. Akiko Shimamura, of Harvard Medical School, discusses the diagnosis of bone marrow failure in the genomics era. (Recorded March, 2016)
Dr. Wells discusses how sexuality can be affected by bone marrow failure diseases. (Recorded on May 17, 2014 at a patient conference in Philadelphia, PA)
Dr. Jamile Shammo answers questions about hemolysis in PNH. (Recorded on April 2012)
View the PNH Interactive Learning Module
Leigh Clark, Patient Educator, discusses the five pillars of our Standing Up for Your Health program for patients (Recorded on April 11, 2013).
Dr. Rice presents on PNH: Current Thinking on the Disease, Treatment, and Diagnosis at our Tampa Conference. (Recorded on November 14, 2015).
Dr. Neal Young, of the National Institute of Health, discusses cutting edge approaches to treating aplastic anemia. (Recorded March, 2016)
Dr. Alan List, of the H. Lee Moffitt Cancer Center and Research Institute, discusses MDS and inflammation. (Recorded March, 2016)
Dr. Matthew Walter, of the Washington University in St. Louis, discusses the pathophysiology and new molecular targets of bone marrow failure. (Recorded March, 2016)
Dr. Luca Malcovati and Dr. David Steensma discuss non transplant treatment for MDS. (Recorded March, 2016)
Dr. Judith Marsh, of King's College Hospital, discusses transplant and treatment for older patients with aplastic anemia. (Recorded March, 2016)
View the Aplastic Anemia Interactive Learning Module
Dr. Ari Giagounidis, of Marien Hospital in Düsseldorf, Germany, answers important questions about lenalidomide treatment for MDS. (Recorded March, 2012)
Dr. Neal Young, aplastic anemia expert, answers critical questions about this condition and its treatment. (Recorded March, 2012).
Dr. Bart Scott, of the University of Washington, discusses important bone marrow transplant advances for MDS patients. (Recorded March, 2012)
View the MDS Interactive Learning Modules
Dr. David Margolis, a pediatric hematologist, addresses questions from parents about pediatric issues. (Recorded November 8, 2015)
Dr. Hofmann explains the causes, diagnosis, and treatment of children diagnosed with MDS in comparison to adults with MDS (Recorded November 21, 2013)
Dr.Hale answers questions from parents who have kids diagnosed with bone marrow failure diseases such as aplastic anemia, MDS, or PNH. (Recorded on November 14, 2015)
Brendan Bietry discusses the new provisions and benefits mandated by the Affordable Care Act and the implications for rare disease patients (Recorded on October 6, 2014)
Leslie Pettiford discusses what you need to do to prepare when you visit your doctor or healthcare team. (Recorded on September 25, 2014)
Helen McNeal defines palliative care is and what it means for bone marrow failure disease patients. (Recorded on September 10, 2014)
Dr. Cogle discusses the five most important questions they should ask their doctor about their aplastic anemia, MDS or PNH diagnosis. (Recorded September 8, 2014)
Sara Tinsley, RN discusses treatment goals, psycho social issues that may affect treatment adherence and quality of life related concerns. (Recorded on August 19 2014).
Laurence Kent addresses some of the common concerns and questions about the process of documenting your wishes. (Recorded on August 9, 2014)
Dr. Isabel Schuermeyer (Cleveland Clinic) provides practical strategies for coping with fatigue, depression, sleep difficulties and much more. (Recorded April 5, 2014)
Jane Meier Hamilton discusses the importance of emotional resilience when dealing with a serious illness. (Recorded on November 9, 2013)
Jane Meier Hamilton explores self-care options for care givers and methods that can help you manage stress. (Recorded on June 28, 2012)
Jane Meier Hamilton, of the National Family Caregiver Association, discusses caregiving challenges and provides self-care suggestions. (Recorded April, 2012)
Dr. Maria Baer (University of Maryland Greenbaum Cancer Center) discusses frequently asked questions about clinical trials (Recorded March 24, 2012)
Dr. David Margolis, uses the idea of a "Bone Marrow Garden" to help kids understand bone marrow failure diseases and treatments. (Recorded Feb. 23, 2013).
View the Blood & Bone Marrow Basics Interactive Learning Module
View the Bone Marrow Transplant Interactive Learning Modules (English and Spanish)
View the Clinical Trials Interactive Learning Module in English or Spanish.
View webcasts of satellite symposia on MDS from Oncology Nurses Society annual meetings. Recordings from 2015 & 2016 available. Get immediate FREE CEs.
Designed for community hematologists, oncologists, gerontologists, and primary care physicians. These MDS case discussions cover symptoms, clinical presentations,...
FREE CE Nursing Modules provide a convenient, comprehensive summary of MDS disease basics, treatments, quality of life issues, and patient education and support.
In this free webinar, speakers will address advances in transplant options for patients with MDS, benefits of timely transplant consultation and quality of life...
Webcast features a review of disease research and clinical practice regarding the contributions of cytogenetics and molecular genetics to the biology of MDS, MPNs and...
This webcast, recorded at our ASH 2016 Satellite Symposium, focuses on the biology, prognosis, natural history and therapeutic management of patients with MDS, MPN,...
This program focuses on the latest developments in research around the pathology of MDS, and how those findings relate to clinical care of patients. Through case study...
In this activity, an expert in myelodysplastic syndrome discusses precision care in myelodysplastic syndromes and the importance of understanding patient perspectives...
In this free continuing education webinar a physician and social worker will present current research and case examples to illustrate treatment options and common...
This symposium provided an up-to-date review of scientific and clinical research related to the biology and management of pediatric and adult bone marrow failure...
Learn communication strategies to help improve outcomes in low-risk MDS patients
Learn communication strategies to help improve outcomes in high-risk MDS patients
Learn communication strategies to help improve outcomes in MDS patients receiving stem cell transplants.