PNH is a bone marrow failure disease that causes red blood cells to break apart. Doctors call this process hemolysis. This occurs because your blood cells are missing a protein that protects them from your body’s immune system.
During this program, recorded on March 22, 2016, Dr. Amy DeZern uses a number of real life case studies to help you understand PNH and its treatment. During this program she explains PNH, discusses possible causes and defines symptoms you might experience. She also covers treatment options, including eculizumab, immunosuppressive drug therapy, stem cell transplantation, and supportive therapies like blood transfusions. She ends with some practical tips for taking charge of your care.
By the end of this webinar, you will understand:
- The three types of PNH blood cells
- The symptoms of hemolysis (red blood cells breaking apart) and thrombosis (blood clots)
- Your treatment options and the advances in PNH treatment
- The relationship between PNH, aplastic anemia, and MDS, specifically aplastic anemia
- What personalized medicine means in relationship to PNH
- How to take an active role in your care
To download the transcript for this program:
- Select Resources tab
- Download PDF of transcription