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The PNH Patient’s Journey: A Snapshot of Short and Long Term Effects

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Description

During this program, Pierse Byrnes, a registered nurse from Johns Hopkins University discusses the short and long term effects that a patient with PNH experiences. This will include a brief explanation of the causes of a PNH diagnosis along with common side-effects you may experience and how you can manage your symptoms for a better quality of life.

By the end of this program, you will:
• Understand the relationship between PNH and aplastic anemia
• Learn how what you can do to better manage common symptoms and side effects
• Learn questions that you should ask your doctor.

This program is brought to you Achillion Pharmaceuticals and Genentech.

Contributors

  • Pierse Byrnes, RN

    Pierse Byrnes has been a nurse at the Johns Hopkins Oncology Center since graduation from nursing school. She initially worked in the outpatient chemotherapy infusion center, specializing in Head and Neck and Esophageal Cancer. She now works as a CRNP in the department of Hematologic Malignancies, specializing in Aplastic Anemia, MDS, AML and Bone Marrow Transplant.