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Putting the ‘drive’ in patient-driven publications

Suzanne Schrandt, Founder/CEO, ExPPect LLC; Patient Advocate, Arthritis Foundation
Dikran Toroser, PhD, Director, Publication Planning Group Lead, Takeda

Moderator: Michael Pellegrino, PhD, ISMPP CMPP, Consultant

This session will be devoted to challenges/pitfalls/best practice and innovative approaches to setting up the author/contributor panels, developing and executing (in the articles) meaningful patient perspectives, and rolling out the content (open access, patient advocacy websites, and so on) of projects/initiatives to develop "patient-driven" publications.

Learning objectives:
  • Be able to identify considerations when approaching patient-advocates/patients for participation in patient-driven content development initiatives
  • Be able to plan content-development initiatives that involve participants with potentially disparate backgrounds and capabilities (with regards to medical publications) so that the resulting content is accessible by experts and lay readers (ie patients) alike, all within a collegial environment where appropriate compliance requirements are met
  • Recognize the diverse needs – including rationale – for publication dissemination of patient-driven content

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