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AP ISMPP U - Engaging the Patient in APAC

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Engaging with patients is critical in allowing them to feel as though they can speak about their disease. This webinar will focus on communicating to the patient, working with patients and case sharing in APAC. Communicating to the patient will focus on “best practices” for patient-centered communication in the region. This area will also touch on common patient lexicons and phraseology for the patients, focusing on what patients want to hear and see. This area will also center on ways of developing trust from patients through communication, while also helping patients to find an advocacy voice.

Next, will center on “best practices” when working with patients. This area will focus on cultural sensitivity and embracing diversity and inclusiveness, while working towards establishing patient advisory councils, incorporating the patient voice into publications and communications. Focus will shift to case sharing and the tips and pitfalls when working with patients and clinical authors and the challenges and opportunities with content development and the review process.

Learning Objectives: At the end of this session attendees will
• Understand the patient engagement landscape in APAC
• Understand best practices in patient engagement
• Share experience on engaging the patient
• Discuss potential solutions/best practices to improve patient engagement in the region

Description

Engaging with patients is critical in allowing them to feel as though they can speak about their disease. This webinar will focus on communicating to the patient, working with patients and case sharing in APAC. Communicating to the patient will focus on “best practices” for patient-centered communication in the region. This area will also touch on common patient lexicons and phraseology for the patients, focusing on what patients want to hear and see. This area will also center on ways of developing trust from patients through communication, while also helping patients to find an advocacy voice.

Next, will center on “best practices” when working with patients. This area will focus on cultural sensitivity and embracing diversity and inclusiveness, while working towards establishing patient advisory councils, incorporating the patient voice into publications and communications. Focus will shift to case sharing and the tips and pitfalls when working with patients and clinical authors and the challenges and opportunities with content development and the review process.

Learning Objectives: At the end of this session attendees will
• Understand the patient engagement landscape in APAC
• Understand best practices in patient engagement
• Share experience on engaging the patient
• Discuss potential solutions/best practices to improve patient engagement in the region

Approved for 1 CMPP credit

Contributors

  • Fiona Wardman, Executive Vice President Global Advocacy & Chief Diversity Officer, HAE International

    • Fiona is a patient with Hereditary Angioedema (HAE), and her diagnosis came after many years of unexplained swelling episodes
    • The Australasian HAE organization HAE Australasia was co-founded by Fiona in 2011. Fiona is a member of the Board and past CEO responsible for day-to-day operations and resources, and was the first point of contact for patients, their families, physicians, pharmaceutical companies and government representatives. Fiona has successfully advocated the government for funded access to treatments for patients in Australia and New Zealand
    • Fiona is the Vice President of Global Advocacy and Chief Diversity Officer for Hereditary Angioedema International (HAEi), is a Director, Treasurer, and the Regional Patient Advocate for Asia Pacific and South Africa
    • Fiona focuses on strategies to improve the quality of life for patients and their families around the globe, with an emphasis on education, awareness, early diagnosis, and gaining access to funded modern HAE treatments

  • Yong Hao Lim, Regional Patient Advocate – China, Taiwan, Hong Kong, Singapore, Indonesia, Sri Lanka & Malaysia

    • Yong Hao is HAEi's Regional Patient Advocate for the Eastern Asia region and also serves as the National Contact for HAE Singapore
    • He focuses on fostering the growth of member organizations and support networks within the region, raising awareness for Hereditary Angioedema (HAE), and improving accessibility to modern treatments
    • Based in Singapore, Yong Hao has more than a decade of experience in applied social and behavioral research, as well as data analytics, within the domains of health promotion and public healthcare

  • Dave Gallienne, Principal Content Lead, Patient Communications, Parexel

    • Throughout his 25-year career, Dave Gallienne has been committed to delivering high-quality work that drives results. This is particularly evident in his passion for inclusivity and patient centricity
    • Dave started work at Parexel as a freelance specialist over 9 years ago, which led to a full-time position shortly after. He is currently Principal Content Lead in the Patient Communications team
    • Prior to this, he worked in different industry sectors as a copywriter, crafting impactful content across multiple media channels for print, online, social, or video

  • Hiroko Ebina, Senior Scientific Director, Team Lead, Envision Pharma

    • Over 7 years of experience in medical communications
    • Has supported publication development in several therapeutic areas, including endocrinology, immunology, infectious disease, neurology, oncology, rare diseases, etc
    • Has experienced in working in Japanese plain language and working with Japanese patient authors
    • Previously,>24 years’ experience in pharmaceutical industry, including >12 years’ regulatory medical writing in pharmaceutical R&D, preparing documents to support the clinical development and marketing approval of drugs

  • Moderator: Joyce Lee, Lead Medical Writer with Nucleus Global

    • Over five years experience in medical communications working in local, regional and global projects
    • Joyce has extensive experience in a range of therapy areas including haematology/oncology, virology and rare diseases and a passion for tailoring communication pieces to reach the target audience

November 8, 2023
Wed 7:00 PM EST

Duration 1H 0M

This live web event has ended.

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