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Live- Measuring What Matters 2024



There is a known association between social determinants of health (SDoH) and chronic disease disparities, and between chronic disease and health related quality of life (HRQL). Far less is known about associations among SDoH, chronic disease and health outcomes, including HRQL. This symposium proposes to highlight conceptual relationships among these concepts and stimulate research ideas, including novel methodologies to analyze relationships between SDoH and HRQL for people with chronic illness.

Level: Intermediate
Some prior training or work experience relevant to the topic is recommended to aid in understanding of symposium content.

Symposium Committee Co-Chairs

Brittany Lapin, PhD
Associate Professor of Biostatistics
Lerner Research Institute,
Cleveland Clinic
United States

Deborah M. Miller, PhD LISW-S
Professor of Neurology
Mellen Center, Cleveland Clinic
United States


DAY ONE                                                     
Session 1: An Overview of SDoH for Health Outcomes
 This session will provide an introduction to the symposium. ISOQOL Past President, Joanne Greenhalgh, will discuss the relevance of this topic to our organization. The primary presenters at this first plenary will provide an introduction to SDoH, including conceptualizations and perspectives of SDoH. The relevance of SDoH to HRQL and its application in addressing outcomes for persons with chronic disease will be discussed.
Objectives:
  • Learn how the topic is relevant to HRQL and ISOQOL
  • Provide an introduction to and perspectives of SDoH
  • Understand how SDoH play a role in chronic disease and health outcomes
Speakers:
  • Joanne Greenhalgh, PhD, Professor of Applied Social Research Methodology, University of Leeds, United Kingdom
  • Ghazala Mir, PhD, Professor of Health Equity and Inclusion, University of Leeds, United Kingdom
  • Alyson Mahar, PhD, Assistant Professor, Health Quality Program, Queen’s University, Canada

Session 2: Addressing SDoH to Improve Health and Well-Being
 Representatives from the CDC and NIMHD will discuss conceptualizations of SDoH and strategies for addressing SDoH from research and programmatic perspectives. A community-level intervention to address blood pressure will be used as an example to highlight how clinic and community linked interventions can address SDoH and improve outcomes.
Objectives:
  • Discuss strategies, challenges and opportunities for addressing SDoH
  • Describe examples of federal approaches to addressing SDoH from program and research perspectives
  • Understand challenges and opportunities for clinic and community linked interventions
Speakers:
  • Karen Hacker, MD MPH, Director, National Center for Chronic Disease Prevention and Health Promotion, CDC, United States
  • Deborah Duran, PhD, Senior Advisor Data Science, Analytics and Systems, the National Institute on Minority Health and Health Disparities (NIMHD) at the National Institutes of Health, United States
  • Shari Bolen, MD MPH, Professor of Medicine, The MetroHealth System and Case Western Reserve University, United States

Session 3: Methodological Approaches to Quantify SDoH
This session will address methodological approaches to measuring SDoH. Methodology topics include composite summary indexes, geocoding, and complex systems modeling of causal effects.
Objectives:
  • Learn how to define SDoH for inclusion in research studies
  • Introduction to novel methodologies such as geocoding and complex systems modeling
  • Understand the social predictors of several HRQL outcomes according to machine-learning and other advanced models
Speakers:
  • David Cella, PhD, Professor and Founding Chair, Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, United States
  • Jarrod E. Dalton, PhD, Director, Center for Populations Health Research, Cleveland Clinic, United States
  • Lisa Lines, PhD MPH, Senior Health Services Researcher, RTI International, United States

DAY TWO                                                   
Session 4: Research in Chronic Conditions
 This session will follow a series of clinical and public health research presentations documenting the relationship between SDoH and HRQL for individuals living with diverse chronic illnesses.
Objective:
  • Based on research, learn how SDoH applies to HRQL and health outcomes in persons with cardiovascular disease, autoimmune inflammatory disorders, mental illness, and for transgender and gender-diverse individuals.
Speakers:
  • Foster Osei Baah, MS-PhD RN, Assistant Professor, Emory University, United States
  • Justin Abbatemarco, MD, Assistant Professor at the Cleveland Clinic Lerner College of Medicine, Staff Physician at the Mellen Center, United States
  • Manraj Kaur, PhD, Investigator, Brigham and Women’s Hospital, Harvard Medical School, United States
  • Jan R. Boehnke, PhD, Reader, University of Dundee, United Kingdom

Session 5: Implementation Science: Application to Clinical Care and Policy
Short presentations will discuss the realities of addressing SDoH, controversies related to SDoH including who is responsible for delivering interventions (communities, health care providers, health organizations/systems, health insurers, government agencies) and how implementation science can guide the translation of SDoH into practice and policy. A moderated Q&A and audience Q&A will follow to close out the event.
Objectives:
  • Discuss who is responsible for driving policy delivering interventions
  • Understand how implementation science can guide translation of SDoH research into practice and policy
Speakers:
  • David Chambers, D.Phil, Deputy Director for Implementation Science, National Cancer Institute, United States
  • J. Gmerice Hammond, MD MPH, Cardiologist at Washington University School of Medicine, United States
  • Jeff Micklos, Executive Director, Health Care Transformation Task Force, United States
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