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Measuring What Matters 2020

4 Presentations 0 Sections

Development and Stakeholder Perspectives of Core Outcomes Sets

Core Outcome Sets (COS), standardized collection of patient outcome measures prescribed for specific populations, are being requested and defined by a range of stakeholders including researchers, regulators, payers, physicians, patients, and health care systems with increased frequency. The methods to define and maintain COS are varied. The differing perspectives of stakeholders may influence clinical research care and medical product development. While outcomes data from COS may help to better evaluate outcomes and quality of care in a standardized way, there remain questions regarding development, implementation, and use of COS, and acceptability of such endpoints for key stakeholders. Measuring What Matters provides a valuable space for exploration of these issues from a variety of perspectives. 

Symposium Committee Co-Chairs


Michelle K. White, PhD
Optum Patient Insights
United States

Linda M. Nelsen, MHS
GlaxoSmithKline
United States

Paivi Miskala, MSPH PhD
Merck and Co., Inc.
United States



ISOQOL members receive a discounted rate. To view membership rates, click  here.

$150.00 - $350.00
Member
$250.00
Non-Member
$350.00
Member: Student/Special/Retired
$150.00
Patient Research Partner: Regular
$250.00
Patient Research Partner: Affiliate
$250.00
Member: Honorary
$250.00
Items Included in the Purchase of this Event

Session I: Introduction to Core Outcome Sets

Presentation: Clifton (Bing) Bingham, MD, Johns Hopkins, Baltimore, Maryland, United States, Donna Messner, PhD, Center for Medical Technology Policy, Baltimore, Maryland, United States, Elektra Papadopoulos, MD MPH, U.S. Food and Drug Administration, Silver Spring, Maryland, United States, 73 min 11 sec

Session II: Methodological Approaches for Development of Core Outcome Sets

Presentation: Paula Williamson, PhD FRSS FMedSci, COMET Initiative Management Group, University of Liverpool, Liverpool, United Kingdom, Lee Aiyegbusi, PhD, Centre for Patient-Reported Outcome Research (CPROR), University of Birmingham, Birmingham, United Kingdom, Jakob Bjørner, MD PhD, Optum Patient Insights, Johnston, Rhode Island, United States, 59 min 48 sec

Session III: Stakeholder Perspectives on Core Outcome Sets

Presentation: Sally Okun, RN MMHS, Independent Consultant, White Stone, Virginia, United States, Eleanor Perfetto, PhD, National Health Council, Washington, D.C., United States, Robyn Bent, U.S. Food and Drug Administration, Silver Spring, Maryland, United States, Tom Valuck, MD JD, Discern Health, Washington, D.C., United States, 64 min 2 sec

Session IV: Future Challenges with Core Outcome Sets

Presentation: Laura Lee Johnson, PhD, U.S. Food and Drug Administration, Silver Spring, Maryland, United States, Donna Messner, PhD, Center for Medical Technology Policy, Baltimore, Maryland, United States, Chris Sidey-Gibbons, PhD, MD Anderson Cancer Center, Houston, Texas, United States, 56 min 32 sec
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