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Measuring What Matters 2022

6 Presentations 0 Sections

Measuring What Matters in Child Health: Challenges, Developments and Opportunities

There are many challenges that arise in the use of patient-reported outcome measures (PROMs) in pediatric populations. These include age and developmental differences, response shift associated with developmental changes and illness trajectories, identifying the best informant(s) (the child, a parent/caregiver, healthcare professional), and understanding what concepts are important to children and at what age they can reliably self-report. The aim of this symposium is to provide a forum to share and debate current conceptualizations of quality of life in children, methodological and operational challenges commonly encountered in measurement and best practice methods for addressing these.

Symposium Committee Co-Chairs

Nalin Payakachat, BPharm MS PhD
Eli Lilly and Company
United States

Rob Arbuckle, MSc
Adelphi Values Patient-Centered Outcomes
United Kingdom

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Session 5: Why is it so challenging to measure preference-based HRQoL in children? Potential measurement problems and challenges

Presentation: J Mick Tilford, PhD, Department of Health Policy and Management, Little Rock, Arkansas, United States, Wendy Ungar, MSc PhD, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada, Lisa Prosser, PhD, University of Michigan – Susan B. Meister Child Health Evaluation and Research Center, Ann Arbor, Michigan, United States, 61 min 41 sec