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Webinar: (11-2023) Community Engagement in Research: Ethical Considerations for HRPPs

  • Overview

Description


Across almost all research disciplines and methods, there has been an increase in different types of community engagement over the last two decades. Community engagement in research is common at some academic institutions, but it is a somewhat new phenomenon at others. While community engagement originated in large part as a response to abuse and exploitation of marginalized communities by researchers, and thus as a means to better protect research participants, there has historically been some tension between community engaged researchers and IRBs.

This webinar aims to diffuse some of that tension, highlighting the shared ethical goals of community engagement and human research protections programs and recommended practices for reviewing research that engages community partners. Time will also be reserved for questions.

What will I learn to do?
  • Describe how various forms of community engagement can enhance human research protections
  • Identify unique ethical considerations raised by community engagement and evidence-based guidance for ensuring appropriate protections
  • Identify tools and strategies to facilitate the review and approval of community engaged research

Who should attend?

This webinar is appropriate for any IRB administrator, staff member, chair, or board member.

Discounts available for groups of various sizes from a single institution!
  • Buy 4 get 1 free
  • Buy 12 get 6 free
For groups of 40 or more, please contact onlinelearning@primr.org to discuss special discount options.

To receive complimentary registrations, first register the paid registrants (e.g. if you’re using the buy 4 get 1 free discount, register the 4 paid individuals first) and then email onlinelearning@primr.org with a list of those paid individuals, as well as the name(s) and emails of those to receive complimentary registration.

Group discount requests must be received at least 24 hours before the event broadcast begins. Refunds or retroactive discounts are not available.

Access Interval
Access to live content will be available for 90 days after the recording is made available. After 90 days, access to the content will be removed, but users will retain access to any certificates of attendance earned. To earn a certificate, one must complete all required sections and complete the certificate section within the 90-day access period. After access has expired, users can purchase an additional 90 days of access.

If you prefer, you can find a paper registration form here. Please send the completed form to registration@primr.org.

*Please note that you cannot purchase this webinar on behalf of others. If you would like to register a colleague or a group, please fill out the paper form or contact onlinelearning@primr.org for an invoice.

Contributors

  • Emily E. Anderson, PhD, MPH

    Emily E. Anderson is associate professor. She teaches research ethics and responsible conduct of research to graduate and medical students as well as courses in empirical bioethics and global bioethics. Her areas of interest and expertise include researcher and physician professionalism and misconduct; ethical issues in research with vulnerable populations; informed consent; institutional review board (IRB) policy; and the application of qualitative research techniques to the study of research ethics. Dr. Anderson has published articles in the American Journal of Bioethics, Ethics and Behavior, Journal of Law Medicine and Ethics, Academic Medicine, Accountability in Research, and the Journal of Empirical Research on Human Research Ethics (JERHRE). She serves as associate editor for Narrative Inquiry in Bioethics. She also has almost 20 years of experience serving on six different IRBs and frequently presents at conferences including the American Society for Bioethics and Humanities (ASBH) and Public Responsibility in Medicine and Research (PRIM&R). Dr. Anderson has also been a co-investigator on several federally-funded research and educational projects.

  • Stephanie S. Cargill, PhD, MSPH

    Stephanie Cargill is an associate professor of health care ethics; associate professor of public health at Albert Gnaegi Center for Health Care Ethics at Saint Louis University. She is the Chair of Castle IRB, a central IRB specializing in gene and cell therapy, and rare disease research. 

  • Ryan Spellecy, PhD

    Dr. Spellecy received his PhD in Philosophy from the University of Utah and is associate professor of Bioethics and Medical Humanities in the Center for Bioethics and Medical Humanities, in the Institute for Health & Equity. Dr. Spellecy has authored and co-authored numerous peer-reviewed articles in the area of research ethics, informed consent, ethical issues in psychiatry, and community involvement in research. He has advised the Patient Centered Outcomes Research Institute regarding engaging patients in the peer review process, the Association of American Medical Colleges on IRBs and community based research, and testified before the National Committee on Vital and Health Statistics regarding the use of clinical data for research. Ryan served on the Association of American Medical Colleges working group on IRBs and community based research. He currently chairs an Institutional Review Board at the Medical College of Wisconsin. Dr. Spellecy is the Blood and Marrow Transplant Clinical Trials Network co-PI for an NIH funded national study evaluating a novel, easier to read informed consent form for BMT trials.

November 14, 2023
Tue 1:00 PM EST

Duration 1H 30M

$100.00 - $170.00
Nonmember
$170.00
Member
$100.00
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