Transitioning your child from pediatric to adult care can be difficult and scary, especially if you have a child with a rare disease aplastic anemia, MDS or PNH. Fortunately, there are proven steps that you can take to make this transition smoother.
During this program, recorded on June 28, 2016, Dr. Pulsipher provides the physician’s perspective. First, he helps you understand how the pediatric care approach and adult care differ. Next he discusses the importance of having a care transition conversation with your child’s hematologist/oncologist. This will include some specific advice and suggestions for topics to cover and questions to ask.
After Dr. Pulsipher, you will hear from Catherine, a close volunteer and advocate for the Aplastic Anemia and MDS International Foundation. She discusses her transition journey from pediatric to adult care and recommends tips and steps that can help create an organized transition for a young person as they acquire independent health care skills and prepare for an adult model of care.
At the end of this program you will understand:
- How the adult care approach differs from the pediatric care approach
- Key topics you and your child need to include in a transition conversation with your child’s pediatric care doctor
- Steps you can take to best support your child with managing the transition to adult care
- Select Resources tab
- Download PDF of transcription