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Kristin Smedley’s
mantra is “Life is funny... sort of.” Her fun‐loving spirit and energetic personality guided
her life in the direction of a career in teaching. However, when her two sons
were born blind, Kristin walked away from the classroom to teach her sons how
to navigate a world they could not see. Knowing that Michael and Mitchell
needed their mother to fight for them, Kristin began advocating for the tools
her blind children needed.
In
2011, Kristin launched a nonprofit to fund research and resources for children
living with the rare eye disease her sons have, CRB1 LCA/RP. In just nine
years, the Curing Retinal Blindness Foundation has raised over 1.4 million
dollars and achieved a National Rare Eye Disease Awareness Day. In 2019,
Kristin published her first book called Thriving Blind: Stories of Real People
Succeeding Without Sight. It achieved #1 New Release on Amazon for paperback
and kindle. Kristin partnered with TMobile and the National Braille Press to
make the book available in Braille. She used that book to catapult an engaged
and supportive online community called Thriving Blind Academy which connects
families living with blindness to each other and to mentors and resources for
succeeding without sight.
Kristin
lives in suburban Philadelphia with her three children and two rescue dogs.